top of page
Search
  • Matthew and Kayla
  • Apr 13, 2020
  • 3 min read

I was six months pregnant when we learned of Hudson’s official diagnosis. Hudson was 2.5 years old. We had wanted a second child for quite some time, but the timing was off because Matt was working out of town 60% of the time and I knew I couldn’t handle 2 children on my own that often. When he finally found a job that didn’t require travel, we decided it was time for another. I never imagined a world where Hudson didn’t have a sibling.


However, learning of Hudson’s diagnosis while pregnant was less than ideal and made for a stressful pregnancy. We were in the midst of trying to sell our house, attempting to find a full set of therapists (he did not have OT or PT when he was diagnosed and would soon be aging out of early intervention, which required new therapists for speech and special instruction as well), and we were also looking for a “school” type of environment to get him into. All of which was recommended when he was diagnosed (minus the house selling, that was just us being extra crazy). When you’re in a rural area like we are, none of these are easily accessible options.


On top of all this, we found out we were having another boy. A blessing for sure, but I was worried. Would this child be on the Spectrum too? Boys are four times more likely to be diagnosed with Autism than girls and honestly, that scared me. This is clearly somewhere in our genes and I spent way too much time googling what the odds were that we would have two Autistic children. I knew it was silly, and that I had zero control over it. Besides, Hudson is an awesome child and we are so lucky to have him, but there was just so much unknown at the time.


Finnley was born in November 2018, and it’s been a rollercoaster ride ever since. His first six months of life he did nothing but cry and eat. He didn’t sleep. I thought for sure something was wrong with him even though he continued to hit all his milestones. I would go to his pediatrician crying and say to them that sleeping in 30-minute increments is not normal, crying nonstop is not normal. It all had to mean something. They told me he was just a very colicky baby and within a few months it would all subside. I always joke and say I’m not sure who cried more that first year; Finn or me.


Finn is now 17-months old and I like to call him my little sour patch kid. He’s sour and then sweet. He’s also so smart, funny and fearless. I am 99% sure he is not on the Spectrum. He knows at least ten animal sounds (and some dinosaur sounds, thanks to Hudson), says a new word a day, copies our every move and is a climbing machine. At four years old, Hudson does all this too of course, but he was not this fearless as a toddler. He was always so cautious, and he still is. Finn will easily climb on the couch or a ride on toy. I remember that being so hard for Hudson as a toddler. Many motor movements still are. And his words didn’t come for two years. With Finn, it’s a whole new ballgame.


Recently I was telling my friends how ruthless Finn can be and how we are constantly on our toes with him. They laughed and assured me “that’s a typical toddler.” Hudson was just so different; he was a cautious, sweet and well-behaved toddler. Whenever people would talk about how difficult the toddler stage was, I’d disagree and say it was my favorite. I still love it, but it is a little more challenging this time around.


ree

I’m so grateful for both of my boys. I love how different they are because those differences have shown me that one way or the other is not best. They’re their own person and I love the little people that they are becoming.

 
 
 
  • Matthew and Kayla
  • Apr 5, 2020
  • 2 min read

Hudson said these words to me for the first time this week. "I don't like you, Dad..."


He repeated this several times while choking back tears. His tears were in anger and frustration from not getting his way. We have tried to not always cave in to his requests, hoping that it would teach him that he will not always get his way in life. In this instance, his meltdown came during lunch. We were watching a show on dolphins, and he wanted to watch a completely different show on whales (although this show DID have whales in it). When I told him "no, buddy; we're watching this right now", HE LOST IT.


I spent the next several minutes speaking to him calmly, trying to calm him down. His screams got louder, and the tears got bigger. I tried my best to not escalate but I could feel my own frustration mounting. As a last resort, I turned off the TV and sternly told Hudson to go to "Time Out" and cool down.


"Time Out" is at the foot our our stairs, in the back corner of the living room. He can still see the TV from there (which is why we typically turn it off during Time Out) and can hear everything that we are doing. It is rare for Hudson to be sent to Time Out where he doesn't scream incessantly. This time was no different.


Being Autistic has given Hudson so many amazing talents. But one of his challenges is how he processes his anger. He doesn't know how to handle what he is feeling, and we can tell that it only frustrates him more. He will repeatedly say things like "I DON'T LIKE WHEN YOU DON'T USE YOUR WORDS" OR "I DON'T LIKE THE BLACK. IT'S NOT MY FAVORITE COLOR!!" (the "black" is the color of the TV screen when it is off). He screams uncontrollably, and starts coughing and hyperventilating. Finnley sometimes wanders over to the Time Out corner when Hudson screams, curious about what is happening. This infuriates Hudson even more.


Kayla and I try to give Hudson a minute or two to calm down in Time Out before we go to talk to him. These meltdowns happen in public, too, and there is a future post coming about a dreadful vacation to Myrtle Beach. Kayla held him this time, speaking to him softly while applying some deep pressure (thank you for this, Krista; it's a lifesaver!). This was a particularly bad meltdown, that took several minutes to recover from.


I know that he didn't mean this when he said it - he couldn't possibly mean it - but I couldn't help but be stunned with sadness when I heard him say "I don't like you, Dad." It is often difficult to not take things like this personally, even when we know that it comes from a place that Hudson doesn't yet understand.

 
 
 
  • Matthew and Kayla
  • Apr 2, 2020
  • 2 min read

Today is World Autism Awareness Day. With our lives currently consumed by the Coronavirus pandemic, it could be easy to forget the significance of this day; this month.


One year ago today, we decided to tell the World about Hudson's diagnosis. Kayla and I wrestled with the thought of telling people not long after we received his diagnosis, but ultimately decided to keep it private. It took awhile for it to seem real to us, and we needed time to process that as a family. We didn't do this out of embarrassment, but out of fear. Fear of how those around us would accept - or judge - him for being Autistic. There is a stigma that often comes with having a "label" and we wanted to protect Hudson from that stigma for as long as we possibly could.


Kayla said it best in her Facebook post from one year ago today:

"Today we wear these shirts for a cause that's very close to our hearts. Today is Autism Awareness Day. This past July, Hudson was diagnosed on the spectrum. I don't talk about it much because it's not anyone's business, but also because I don't want people labeling him because he has a diagnosis. Autism has such a stigma attached to it, but it isn't always what you think it might look like. There is a reason why it's called a spectrum, and it is a very big one at that. Hudson is very high-functioning; he is verbal and very smart, and rarely has tantrums outside of what any other 3-year old might have. However, he does struggle socially (poor eye contact and would rather play alone).


It hasn't been easy (and it's still not) but I am thankful for his therapists and that we got him the help he needed as early as we did. He's made massive improvements in the year and a half since starting Early Intervention.


He is our world and we love him so much. We don't ever want him to think we're ashamed of him, because we're not. We are so proud of our boy. He's teaching us so much more than we ever knew about Autism and made me a better person, and a more patient parent. Honestly, I wouldn't change who he is for anything."

The idea for this blog came to me not long after we revealed that Hudson was on the Spectrum (and it only took 11 months to muster the courage to sit down and start writing!). Kayla and I have so many stories to share with you all, and plan on posting many of those stories this month.


Autism Awareness has grown over the years (thanks to amazing organizations like AutismSpeaks), but there are still many who either don't understand it, or don't believe in it. We would like to encourage you all to learn more about the Spectrum, especially this month!


ree


 
 
 
Get In Touch

Thanks for submitting!

Subscribe Form

Home: Subscribe

Subscribe Form

6073514571

©2020 by Letters From The Spectrum. Proudly created with Wix.com

bottom of page